Losing a best friend
Five years ago this week, on May 16, 2011, I stood outside my rented row home and watched as my best friend left with his new family for...
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My Dystrophia
My journey with rigid-spine congenital muscular dystrophy (SEPN1)
Dystopia: an imagined place or state in which everything is unpleasant or bad.
Dystrophia: a real place or state of muscular dystrophy in which everything is ...
I am 46 years old living in the United States and this is my journey and my experiences of living with a rare congenital muscular dystrophy known as SEPN1-RSMD.
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