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Some German Inspiration
I have not updated this blog in a long time. Life just got very busy! But here I am again - still very much alive and kicking. The reason...
Dystopia: an imagined place or state in which everything is unpleasant or bad.
Dystrophia: a real place or state of muscular dystrophy in which everything is ...
I am 46 years old living in the United States and this is my journey and my experiences of living with a rare congenital muscular dystrophy known as SEPN1-RSMD.